Sunday, September 22, 2013

I Quit

I've decided to stop being bisexual. I am neither relinquishing my attraction to more than one gender nor am I going to cease mentioning that I am bi when it is relevant. I'm merely done trying to be a member of the bisexual community. The reason is simple: I won't be the kind of disabled person necessary for inclusion. I am no longer willing to follow these rules: A. Do not talk about my disability. B. Do not discuss my disability-related needs. C. Smile and be grateful for any bit of attention "lavished" upon me. D. Embrace or tolerate the "Let me help you, poor thing" attitude that comes with any aid. E. Allocate my disability-related needs to the realm of wants subject to the "whims" of people's "kind" hearts. F. Let prejudice behavior and policies exist without naming them as such. So, today as the bisexual community comes together to celebrate and raise its visibility, I am taking a giant step away from that community until I can be both disabled and bisexual at the same time. I have not made this decision lightly or in haste for it is only after years of working as a leader in my local bisexual community that I have come to this crossroad. The last three months, as I've taken time from that leadership to focus on health issues, I have watched as any acknowledgment of disability vanishes from the activities of the local bisexual community Then, too, there is the behavior of the bisexual community on the larger national scene. My comments on accessible practices have been snubbed. Requests that people think about accessible formats are not acted upon. Disability might as well be a planet in another galaxy given the amount of attention it receives. Finally, there are the individuals that compose the bisexual community. I am the eight-year-old child at an all grownup party that never conceived of a child being present. While this is not substantively different from how I am treated in heterosexual social situations, I would have expected more from a collection of people who routinely experience social isolation and discrimination. Today, more than nineteen years since I left my closet, I am not exactly returning to that enclosed space. I'm leaving the bisexual building and only going back for brief visits when my bi friends invite me. Maybe the whole "Be polite to guests" principle will apply. [If you are left thinking, "Wow, she's angry," then go read the previous entry for my perspective on anger.]

Beyond Anger's Reputation

Anger has a bad reputation. It is associated with such negative emotions as hate, jealousy, ridicule and disgust. It has been linked to outbursts of shouting, abuse, violence, rape and destruction. Anger is associated with ulcers, high blood pressure, and heart attack. It has no redemptive value whatsoever. I've been struggling with this assumption of anger as a negative emotion. While it can lead to less healthy and helpful feelings, is getting angry entirely bad? Anger might sometimes lead to bad behavior, but is that always the case? When TABs do something ridiculous, I feel angry. Talking about the event later, even when I use humor, my anger is apparent to many. Based on anger's bad reputation, my response to suboptimal TAB behavior has been called into question. "Jen, you are so angry. Why is that? It can't be good." Oh, really? Can't it? I live in a world where my value is underestimated and who I am as a person completely misconstrued on a routine basis. I am subjected to a lot of actions I dislike. Furthermore, my life is shaped by these attitudes and assumptions. (If nobody sees me as datable, then bottom line is lack of sex. I'm pissed about that.) There is an awesome quote by Krishnamurti: “It is no measure of health to be well adjusted to a profoundly sick society.” In other words, getting angry at a world that sees disability as ours does is not a bad thing. Getting angry at sexism, racism or homophobia is not a negative state. It is healthy to perceive societal sickness and have a negative response to it. What is not alright is to be eaten up by the anger so that you become an angry person. It is equally undesirable for the anger to lead to health problems. Finally, if anger fuels bad behavior, it is not a good outcome. The question then becomes whether or not the anger is healthful or harmful. My anger about society's attitudes and behavior surrounding disability feels like a clear, cleansing presence. A person does something ignorant and on my good days, I become filled with a bright light. It burns away all the potential negative beliefs I'd otherwise internalize. To me, the "bad" response to TAB ignorance is to think the world is right. That leaves me feeling worthless, small and useless. It feeds depression, low self-esteem and a sense of pointlessness because if they are right that I am less, what is the point of life? Sucking up resources when you give nothing positive back in return seems wrong to me. Anger, though, clears out the emotional dark. Moreover, it fuels my desire to change the world. Anger is what makes me educate those I encounter with suboptimal beliefs. Anger keeps me trying even when it's the fourth time in twenty-four hours that I've been treated like I'm three. Anger keeps me writing and talking and explaining and trying to change the world. My passion –the thing I want to achieve above all other things in my life – is altering how society views disability. Anger keeps me trying to do this. It is motivation and feeds my hope that change will come. It doesn't weigh me down. It lifts me up. I can understand viewing anger negatively when the impact on the individual is harmful. How, though, is my anger doing me or the world around me harm? A fire can burn. A fire can be a warm, comforting presence. Who is to say anger isn't the same?